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Update on the medication, Auigust 2009
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Mark's glutamate-free diet
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Aug 26 2009, 4:18 PM EDT by
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Thread started: Aug 26 2009, 4:18 PM EDT
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Next month, Mark will be on just 200mg BD of Quetiapine. This will be a third of the dosage he was on less than a year ago. It continues to be a rocky rid, with nasty witrghdrawal symptoms occuring between 3 and 15 days after each reductionm, but we ride the storm and mark settles down within a month.
Mark's behaviour continues to improve and the only way that he misses the medication is that he sleeps better, feels better and is regaining his personaility bit by bit. The psychiatrist has agreed to a progressive reduction to zero, carefully monitored in 25mg steps. The voices in Mark's head have nit disappeared, but they cause less pain for him We are a lot more optimistic about the future. Ed
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Allergy Test consistent with own findings
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Mark's glutamate-free diet
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Jun 6 2009, 8:09 PM EDT by
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Thread started: Jun 6 2009, 8:09 PM EDT
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Mark had a private allergy test, using a kind of bio resonance test machine. The machine showed extreme intolerance to Gluten, Tomato, chocolate, shell fish, banana, caffeine, pine (?),. It also suggested massive shortfall in Magnesium. We decided that we needed to get magnesium supplements while we found more natural foods that were high in Magnesium, but not one to which Mark was intolerant. 3 weeks on and Mark has responded really well to the supplements, and his Quetiapine dose is DOWN AGAIN!
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The power of Allergy and deficiency testing
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Discussion Forum
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May 17 2009, 5:55 AM EDT by
edgilchrist |
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Thread started: May 17 2009, 5:55 AM EDT
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We know that Mark is intoleramt to many substances. We know this because we have seen his reactions over the years. Some substances are much worse than others.
But it is not easy to be sure that you have found all of the allergies or that the ones you have found are really allergies. And it is impossible to use simple home techniques to identify vitamin and mineral deficiencies. (It's actually very hard for some of these deficiencies to be conclusively tested by professionals in the NHS)
So, for a long time, we have been looking for a formal allergy testing process.
Frustratingly, our GP and the rest of the health service have failed us in this. If it is not one of their regular allegies, they are simply not bothered.
By some fluke, we found a natural health practitioner who does these tests. It is inexpensive, non-intrusive and quick and produces an excellent report that you take away. It might, to some, sound like mumbo-jumbo, but we know it is not and we can prove it.
If you have a mental (or other) condition that is hard to diagnose or treat, then perhaps this test will help you. It is now helping Mark, as (a) we have reassured ourselves that we have been doing the right things and (b) we have identified more subtle things we now need to start doing. Most of all, the science of what we learnt stacks up with what we see as symptoms.
We even identified a possible, naturally treatable, cause of the siezures, let alone the autism and the psychosis
We'll soon help Mark to be off all that crazy medication!
If you want to try this test for yourself (and I highly recommend it), then contact me.
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DETOX first!
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MENTAL HEALTH TIPS
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May 7 2009, 4:12 PM EDT by
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Thread started: May 7 2009, 4:12 PM EDT
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When we read what people say about how diet can help with your mental health the advice usually comes in one of two forms...
Things to ADD to your diet to enhance mental performance (like 'fatty acids' and so on) Things to REMOVE from your diet to alleviate mental health problems.
Depending on your priorities, in general we think that it is best to start by REMOVING bad foods and drinks first. This is because GOOD stuff will be less effective while you are filled with BAD stuff.
Bad Stuff?? Well, we think that excitoxins like artifcial flavourings (eg MSG) and sweeteners (eg Asapartame) are really bwe steer clear. Artificial colourings are also on the NONO list. Colours in the E101-132 range, with names like 'sunset yellow' (sounds really iffy, doesn't it! Read about it and decide for yourself.) Caffeine - yes, no regular tea or coffee! Just cut it out and get to like water and one or two of the naturally caffeine free teas.
Once you have done these, you will be working from a better start position to understand what else, if anything, needs to be done.
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Questions to ask your specialist about your medication
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MENTAL HEALTH TIPS
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May 7 2009, 4:03 PM EDT by
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Thread started: May 7 2009, 4:03 PM EDT
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When discussing treatment for a mental health condition with your GP, Psychiatrist or other specialist, you might consider asking some of these questions...
Before resorting to medication, is there a natural intervention, anecdotal or otherwise? If I am to be medicated or vaccinated, what tests have been done on the drugs (including the ingredients and additives eg coating, colours, etc.) with people who have a similar set of conditions and treatments as me? Is it possible to see the reported results of tests? Is there an independent expert who can talk to me about the condition and any alternative treatments? What will you do, after I start treatment, to ensure that we achieve an optimum balance for my quality of life?
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Diabetes, psychosis and diet
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Hyperbaric Oxygen Therapy (HBOT)
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May 4 2009, 7:23 AM EDT by
edgilchrist |
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Thread started: May 4 2009, 7:23 AM EDT
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Hi Neil, thank you for posting this really interesting note. The HBOT site is full of really good, balanced, information. and it will take me a good while to browse through it. I will pop another link on the main 'links' page on this site.
The subject of diabetes has quite an interest for me as I have a relative who has developed it. She is in her early 30s and has suffered with Schizophrenia since about 20. She is medicated nowadays and lives some kind of life, albeit very basic. Her food and drink habots are not good, and she is particualrly fond of diet drinks. I am convinced that her weight issue and her diabetes (if not the psychotic problem itself) are linked to diet n some way.
I also have an interest to find out more about the link between diabetes and the immune system. It's these areas that I think are very much common ground with autism, seizures and some forms of psychosis.
My family and I are users of aloe vera gel drinks and other aloe vera products and we know that it has a positive effect on the immune system. It is said that it helps balance the immune system. My wife totally controls her arthritis with it and we know that it has positive effects on psoriasis and damage to the stomach and colon.
The problem with giving it to my son is that he is so sensitive to changes in his brain chemistry that he reacts quite severly to it and we have yet to figure out an effective 'daily dose'.
By the way, any threads on this page will also automatcally appear on the 'dicussions' page.
Cheers Ed
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One child in 60 'suffers from a form of autism'
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Discussion Forum
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Apr 30 2009, 7:45 PM EDT by
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Thread started: Apr 30 2009, 7:45 PM EDT
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By Sue Reid Last updated at 11:33 PM on 20th March 2009 Mail Online
http://www.dailymail.co.uk/news/article-1163606/One-child-60-suffers-form-autism.html
Far more children have autism than previously thought, a study of British school pupils has found. Researchers now believe as many as one in 60 children has some form of the condition. The disturbing findings, which are due to be made public within weeks, mean that up to 216,000 children in the UK could suffer from an autistic condition, although many have not yet been diagnosed. The research could have a major impact on public services in Britain with many more youngsters potentially needing a lifetime of special care.
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Can diet really improve the symptoms of autism?
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Discussion Forum
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Apr 30 2009, 7:36 PM EDT by
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Thread started: Apr 30 2009, 7:36 PM EDT
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http://www.dailymail.co.uk/health/article-1160826/Can-diet-really-improve-symptoms-autism-Read-familys-story-decide.html
Read this family's story and decide By Angela Epstein Last updated at 1:34 AM on 10th March 2009 Mail online
Simone Sewell still shudders at the memory of the moment she was told her two-year-old daughter, Sienna, was autistic. She and her husband, Geoff, sat in shock as the paediatrician spelt out the bleak future that awaited their first-born. 'The doctor said Sienna would never fall in love, marry or have an independent life,' recalls Simone. 'With no hope of a cure, we were more or less told to live with it.'
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Newly found genetic variation linked to autism
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Discussion Forum
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Apr 30 2009, 4:57 AM EDT by
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Thread started: Apr 29 2009, 7:56 PM EDT
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"A newly identified genetic variant could account for up to 15 per cent of autism cases, say researchers who studied genes that are important in connecting brain cells..."
Read the whole of the CBSnews report here... http://www.cbc.ca/health/story/2009/04/28/autism-genes.html#articlecomments
Will this news actually lead to a future reduction in the number of reported ASD cases? Will it help anyone already wit the condition? Perhaps, perhaps not. But hopefully, this reasonably positive news will not deflect our attention away from the potentially greater risk of chemical imbalances in sensitive brains, and the possible connection with so many unnatural substances in so much of our food and drink.
For those with robust brains, it's easy to dismiss the food notion. But would anyone argue that most of us have some degree of intolerances and that intolerance screening of children would have a generally helpful affect on wellbeing in society?
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Last Reply:
RE: Newly found genetic variation linked to autism
By: ,
Apr 30 2009, 4:57 AM EDT
1 day later - and I can't find the article, or any comments about it, on the www.nature.com website any more. Perhaps I'm looking in the wrong place? But perhaps it's an indication of how important it was to them?
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Support for Ed
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Discussion Forum
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Apr 11 2009, 2:38 PM EDT by
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Thread started: Mar 12 2009, 2:00 PM EDT
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Come on you guys and galls - Ed has been working his B***ocks off - to get this thing moving.
He needs a hand!
1
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Last Reply:
RE: Support for Ed
By: ,
Apr 11 2009, 2:38 PM EDT
thanks Gordon. You're a good man!
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Misleading marking of ingredients?
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Discussion Forum
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Apr 11 2009, 8:44 AM EDT by
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Thread started: Mar 12 2009, 2:24 PM EDT
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The food and beverage industry has come a long way with regard to telling us what they are putting in the food we buy. And it's not just the industry who have changed their habits - consumers are also paying a lot more attention to what is in the stuff they buy. I, for one, spend a lot of time reading packets and bottles for things to avoid in our diet.
Many foods and drinks now carry little boxes with neat 'ticks' against the words, "No artifical colours", "No artificial flavours", giving us a clear indication that they view it as good to leave out such additives. Perhaps they even think these additives are bad for us? It would be nice if they said so.
Perhaps they are just saying that these additives stop people buying their products? Either way, it's great that we can now see, at a glance,.if their food is 'safer' to eat.
...OR CAN WE??
We have some evidence that labels like this can be misleading. Whether or not is is deliberate is for you to decide.
SO, this topic is for you to tell us if you have come across misleading labeling and why you think so.
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Last Reply:
RE: Misleading marking of ingredients? Robinsons drinks
By: ,
Apr 11 2009, 8:44 AM EDT
I just looked at a pack of mashed potato from Asda's health line. They clearly state on the pack "No hidden nasties". I'm really pleased about that. But I wonder what they class as 'hidden nasties'? perhaps someone could ask them?
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Should children be screened for food intolerances?
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Discussion Forum
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Apr 11 2009, 8:42 AM EDT by
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Thread started: Apr 11 2009, 8:42 AM EDT
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The argument goes on and on about whether or not the substances we put into our bodies is harming our mental health. Substances like artificial additives (MSG, AZO's Aspartame, etc,), vaccines,, and even regular foods like yeast, milk, wheat, onions, soya...and many more have been reported as having serious adverse affects of some people.
If any of this is true, then should we not have a system of screening (intolerance testing) in place? How much cheaper would it be to do these tests than to deal with the costs and consequences of mental illness?
And if there is no truth, then screening would surely prove it?
I know that my son has an intolerance to many things. We know this now, because we have scientifically gone about it over many years. We also know that he has come back from his 'mental prison' because we have removed a lot of these substances from his diet.
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Expert contributions
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MENTAL HEALTH TIPS
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Dec 30 2008, 9:29 AM EST by
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Thread started: Dec 30 2008, 9:29 AM EST
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If you are an expert, medical, clinical, science, neurology or nutrition and diet, and you wish to correct errors, support what has been said, or add information, then please reply to this thread. Thanks.
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edgilchrist |
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Getting intolerance and allergy tests
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HELP NEEDED
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Dec 29 2008, 6:23 AM EST by
edgilchrist |
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Thread started: Dec 29 2008, 6:23 AM EST
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Our son is responding really well to a Glutamate Free regime. It's tough to stick to and also quite expensive. It is a long and hard task to use 'trial and observe' methods at home and so we need a scientific, non-intrusive and safe method of identifying the most problematic foods that he should avoid.
We asked our GP for help, but he is unable to identify such tests for allergies and intolerances to glutamate as it isn't in his book. We have thought of asking for tests for the many things we think contain glutamate, starting with gluten, casein, yeast extract, tomato and so on, but we need expert and enthusiastic help in this and our GP seems uable to provide it in this instance..
We don't believe that we should have to go outside of the Health Service to do this. Can someone offer information as to what can be done? We live near Liverpool in NW UK.
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Can diet drinks actually make it HARDER to lose weight!
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Discussion Forum
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Dec 23 2008, 6:07 AM EST by
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Thread started: Dec 23 2008, 6:04 AM EST
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Have to be careful what I say on this one... the diet drink companies are powerful people. What I will say is simple.
My daughter used to drink a lot of 'famous brand' diet drinks until I told her to read up on what Aspartame (and simialar stuff) is suspected of doing to you. That was 3 months ago. She has since lost 8 pounds without doing anything except swtiching from these drinks to more natural porducts.
So if you are struggling to lose weight and then find you are putting a lot of artificial sweetener in your diet, then you might want to see if there is a connection FOR YOU!
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Psychosis diminished dramatically as a result of a glutamate-free diet
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Discussion Forum
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Dec 20 2008, 8:56 AM EST by
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Thread started: Dec 20 2008, 8:56 AM EST
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The background to this connection is on its own page - "Mark's glutamate-free diet."
We have strong anecdotal evidence that, for our son who has suffered with Autism and a seizure condition, changing his diet has reversed serious schizophrenia. This evidence is supported by scientific facts. His medication has consequently been reduced and, 5 months on, he continues to be far better than when on the full dose.
In this time, we have also learnt many other things about drugs, food and behaviour.
For example there IS a scientific link between Valproate and excess glutamate, There IS a link between seizures and Glutamate. It's not just MSG that is the source of glutamate in our food - it's a major problem in thousands of products. Artificial sweeteners, eg Aspartame, may be more likely to make you PUT ON weight than lose it, and that they have really serious affects on the health of many people.
We also learnt that many in the food and drink industry deliberately disguise these toxins under different names.
And we have found many books and articles that give sensible, level headed information from a scientific an clinical perspective. (Some are referenced on this site.)
And there is more. Ed
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Connecting diet to better mental health
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Dec 6 2008, 9:05 AM EST by
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Thread started: Dec 6 2008, 9:05 AM EST
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Hi... ...you may have come across this site just now, or you may even be a regular contributor. Either way, it's always possible that you have thought it could be better in its aims or even in the content or opages, etc.
Like it a lot, or not a lot... let me know how and why, by replying to this thread.
(I will put a poll on another page so that you can 'vote; on this question, too.) cheers Ed
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Vaccines, Neurodevelopment and Autism Spectrum Disorders
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Dec 6 2008, 6:56 AM EST by
edgilchrist |
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Thread started: Dec 6 2008, 6:56 AM EST
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This is an entry from the blog of Russell L. Blaylock, M.D. Cut & paste the link below into your browser. (Sorry - I have been unable to auto link just now, and you will need to concatenate the two lines for te full link.)
It is an absolutely fascinating read, though a little scary, so be careful not to jump to too many conclusions!
http://web.mac.com/rblaylock/Russell_Blaylock_M.D./Information/ Entries/2008/3/12_Vaccines,_Neurodevelopment_and_Autism_Spectrum_Disorders.html
I have extracted a paragraph from his blog entry. I hope that he does not mind me doing this. I will be writing to him to ask permission.
“Yet, let me, or anyone else, suggest that excessive vaccination can increase the risk of not only autism, but also schizophrenia and neurodegenerative diseases, and they will scream like banshees –Where is the evidence? Where is the evidence? When we produce study after study, they always proclaim them to be insufficient evidence or unacceptable studies. More often than not, they just completely ignore the evidence. This is despite the fact that we produce dozens or even hundreds of studies that not only demonstrate the link clinically and scientifically, but also clearly show the mechanism by which the damage is being done –even on a molecular level. These include cell culture studies, mixed cell cultures, organotypic tissue studies, in vivo animal studies using multiple species and even human studies. To the defenders of vaccine safety-our evidence is never sufficient and, if we face reality –never will be.”
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Research links epilepsy drug to autism.
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Discussion Forum
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Dec 5 2008, 8:54 PM EST by
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Thread started: Dec 5 2008, 8:54 PM EST
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(1st December 2008)For the article, cut and paste this lnk into your browser. http://www.medicalimagingmag.com/reuters_article.asp?id=20081201epid003.html
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Who knows best?
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Dec 3 2008, 6:22 AM EST by
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Thread started: Dec 3 2008, 6:22 AM EST
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Where I live, we frequently come across the debate of 'professionals v parents' and it's not always a happy debate. I wonder if anyone out there has some good things to share about how this works where they come from?
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